Yesterday i started the day out feeling like crap, so i called my mom and had her come down. I had both babies and had a feeling that it wasnt going to be a good day! Sometimes i really Hate when im right! I was worried because i had already by 9am had a bloody nose and was feeling weak and tired. My mom got here around 11:30 and i was sick i was freezing cold burning hot headache body ache. UGH! So my mom let me go to sleep i just laid there waiting to fall asleep i was so cold that my body wouldn't allow me to fall asleep. I called my Cf nurse and she thought i should go to my primary care doc. So i called there.............he's not in until next week! Plus I'm in no condition to even get out of bed at this point. I call Eric and tell him that he needs to come home.
The FUN starts!!!!
I get another bloody nose(not ur typical bloody nose, Im talking running like a faucet) Im starting to freak out its not stopping! Eric calls my Cf nurse and asks what we should do. Take her to the ER ASAP! I havent taken a shower have no make-up on no bra, been sweating and freezing all day in bed i look like a hot mess! So i proceed to shove toilet paper up my nose while trying to get my bra on. Grab another roll of toilet paper and head out.
We get to the ER and my toilet paper roll is almost gone we live like 10 mins from the ER. Of Course people are staring at this point i can barely keep up with the blood flow. thank god i sat right next to the garbage. This poor kid a few chairs down couldn't help but stare, but was so grossed out. hahaha as im pulling klenex from my nose and trying not to let it all drip on the floor before getting a new one to my nose. They call me back which was really quick. The guy asks did u get hit with a softball?? ahhh nope just a bloody nose! OH he says. He tells me to pinch my nose.......Really?? Dont you think if that helped i would have been doing that all along! The problem is it starts backing up into my throat and i start gagging and throwing up thats how much blood is flowing. He gives me a bag to spew in. 5 mins go by. Im telling Eric i cant breathe and im feeling this pressure in my nose so i let go and blow a little this enormous blood clot fly's out! Eric almost pukes. I start FREAKING out. my nose has been bleeding now for atleast 45 mins or longer. Pardon my French---I was like get that FUCKIN nurse in here!
Eric runs next door as is telling the nurse she is passing huge blood clots. NURSE-ok ok we are waiting for a room.
Finally i get to a room and the nurse is a complete BITCH snotty as hell! Blood is now dripping on my clothes. she gets an IV started to get fluid in me i feel like im going to pass out at any second. I start crying and shaking saying please get a doctor in here. She like you are on the top of the pile, if the docs not her by the time i place this Iv i will go and get him. In the mean time my eyes keep getting cloudy, Eric says ummm are her eyes bleeding??? the nurse is like no there is just blood on her face. I said my eyes keep getting cloudy. So she wipes my eyes and says nope. I look at the gauze and there is blood on it, there is so much blood pooled up in my face that my tear are now bloody. I said get some one in her NOW!!!
Doc finally gets in and pulls the clamp off and gets a suctions that is the size of a needle like thats going to help?? haha what a dumb ass! I almost started to laugh so he starts suctioning nothing is coming out. I said can i just blow my nose?? it will go alot faster. he says Yes i blow and chunks of clots are falling out. He finally gets in there and cauterized the artery that was broken. THANK GOD!! We sat there for another hour to make sure the bleeding wouldn't start again. It didnt and we got to go home. UGH what a night. Now im not suppose to lift or bend for 4 days. haha how am i going to do that with a 1year old. My mom is coming down again today and my mother-in-law is coming Thurs. and Eric will be home Friday so i guess i will be just fine,Im in good hands!
Wednesday, June 30, 2010
Tuesday, June 29, 2010
WHAT GIVES????
WHAT GIVES????
I am off the antibiotic and prednisone. YEAH! But there is another problems............not sure what it is from or how it happens but i have been getting bloody noses the last week atleast 2 times a day. UGH! Gradually getting worse last night was terrible i lost atleast a 1/4 cup of blood or more out of my nose and it seriously runs like a faucet. So this morning it happened again, i called the doctor and ask if its is happening because if my meds. she said no you probably have a hard artery that needs to be coagulated. WHAT the hell does that mean?? So my doc is going to call back this afternoon and let me know what i have to do. It is a never ending problem, its like i trade one issue for another! SUCKS!! Tomorrow i have my PFT test to see where my lungs are at and how they are doing. Excited but nervous, I will be shocked if they dont but me on IV antibiotics, jusst because now being off the antibiotic and pred. for a short time my lungs feel really tight again and coughing hurts. I am so sick of dealing with this CRAP!!
On a lighter note- Today is my last day with Mr. T-Bomb. We are sad but my health is more important. We will watch him as need be. To help out when they need it. Ari is going to be sad not seeing him, they are at that age where they play together. It's so cute. This morning they were chasing each other. T would smile and Ari would be laughing. wish i would have recorded it.
Bachlorette- WE love IT!!! Yes i said WE. haha We have DVR so we record it. well last night i got home late from litchfield. Eric had watched half of it by himself haha. So of course i needed to watch it from the begining so he watched it again! God he must really love me. Personally i like Roberto, Ty, and Chris. They are all true gentlemen. but i think Ali will go after Roberto. I really hate Frank he is a douche. Last nights preview was proof. Cant wait til next week........Maybe we should have date nights on Monday nights-Sounds like alot of couples are into this. ha
EXCITING- Hopefully today i will have another niece or nephew. YEAH! Charity is being induced either later today or tomorrow. Her due date was the 26th so she is ready to get it out!! Pray for a fast birth and a healthy baby.
I am off the antibiotic and prednisone. YEAH! But there is another problems............not sure what it is from or how it happens but i have been getting bloody noses the last week atleast 2 times a day. UGH! Gradually getting worse last night was terrible i lost atleast a 1/4 cup of blood or more out of my nose and it seriously runs like a faucet. So this morning it happened again, i called the doctor and ask if its is happening because if my meds. she said no you probably have a hard artery that needs to be coagulated. WHAT the hell does that mean?? So my doc is going to call back this afternoon and let me know what i have to do. It is a never ending problem, its like i trade one issue for another! SUCKS!! Tomorrow i have my PFT test to see where my lungs are at and how they are doing. Excited but nervous, I will be shocked if they dont but me on IV antibiotics, jusst because now being off the antibiotic and pred. for a short time my lungs feel really tight again and coughing hurts. I am so sick of dealing with this CRAP!!
On a lighter note- Today is my last day with Mr. T-Bomb. We are sad but my health is more important. We will watch him as need be. To help out when they need it. Ari is going to be sad not seeing him, they are at that age where they play together. It's so cute. This morning they were chasing each other. T would smile and Ari would be laughing. wish i would have recorded it.
Bachlorette- WE love IT!!! Yes i said WE. haha We have DVR so we record it. well last night i got home late from litchfield. Eric had watched half of it by himself haha. So of course i needed to watch it from the begining so he watched it again! God he must really love me. Personally i like Roberto, Ty, and Chris. They are all true gentlemen. but i think Ali will go after Roberto. I really hate Frank he is a douche. Last nights preview was proof. Cant wait til next week........Maybe we should have date nights on Monday nights-Sounds like alot of couples are into this. ha
EXCITING- Hopefully today i will have another niece or nephew. YEAH! Charity is being induced either later today or tomorrow. Her due date was the 26th so she is ready to get it out!! Pray for a fast birth and a healthy baby.
Wednesday, June 23, 2010
I-pod download
I was thinking about SONGS this morning. like the ones that get you movin and grovin. What are some of the songs that you enjoy?? I wanna make a fun playlist for my I-pod. I really love this one by Macy Gray
http://www.youtube.com/watch?v=0qX7ZsxD3Ik
http://www.youtube.com/watch?v=0qX7ZsxD3Ik
Ari loves shakin her booty. So everyone that reads my blog let me know what you like.
HAPPY HUMP DAY!!!!
Thursday, June 17, 2010
Summer Days
What a nice day today hot and humid. Tonight was crazy windy glad there were no tornado touchdowns here. Hope everyone else is safe and no damages to there homes.
A few updates:
- Ari is WALKING but only to Eric haha. If i try she gets down and crawls to me :( But whatever it will come soon enough. Her left top tooth is almost through, currently a huge lump. Poor girl has been pretty crabby. She has been sleeping until 8/8:30 every morning!! YEAH for me i get to sleep in and enjoy every minute.
-Meds i have been feeling better. My lungs feel bigger and its easier to breathe. Thanks to the prednisone for opening my airways. One huge problem is the antibiotic.... makes me really dizzy. like i almost black out. super scary! The predinsone also makes me hungry all the time, which is a good thing cuz i need to gain some weight, but sucks because it is so annoying to always be digging in the fridge. Not sure when i will be going back to the Mayo for testing to see my improvement. Hope its good enough, so that i dont have to stay in the hospital for a week.
Very Excited for the weekend, to actually get out of the house with Eric and Ari and feel good for a change. We hope to hit up the beach by our place and be outside as much as the weather allows us. If anyone wants to join us give a call. Excited for Sunday to spend the day with Eric and celebrate him being a wonderful Father. I love that they have special days set aside for special people!
A few updates:
- Ari is WALKING but only to Eric haha. If i try she gets down and crawls to me :( But whatever it will come soon enough. Her left top tooth is almost through, currently a huge lump. Poor girl has been pretty crabby. She has been sleeping until 8/8:30 every morning!! YEAH for me i get to sleep in and enjoy every minute.
-Meds i have been feeling better. My lungs feel bigger and its easier to breathe. Thanks to the prednisone for opening my airways. One huge problem is the antibiotic.... makes me really dizzy. like i almost black out. super scary! The predinsone also makes me hungry all the time, which is a good thing cuz i need to gain some weight, but sucks because it is so annoying to always be digging in the fridge. Not sure when i will be going back to the Mayo for testing to see my improvement. Hope its good enough, so that i dont have to stay in the hospital for a week.
Very Excited for the weekend, to actually get out of the house with Eric and Ari and feel good for a change. We hope to hit up the beach by our place and be outside as much as the weather allows us. If anyone wants to join us give a call. Excited for Sunday to spend the day with Eric and celebrate him being a wonderful Father. I love that they have special days set aside for special people!
Monday, June 14, 2010
Thursday, June 10, 2010
Mayo Cont.
UGH! I dont even know where to begin..................................I saw my Cf doctor and things are NOT good. My lung function has plummeted in the last 6 months. Most of you already know that i have been feeling like shit and have been very run down. But im talking serious like from 6 mo ago my volume was 2.4, today was 1.7 We are talking 50th percentile for lung function. around 40% is when they start talking about transplants. My doc was like Teri this isnt looking good. It seriously took everything in me to not start balling right there. He said its HOSPITAL time......................I begged for something else. He got on the phone and talked the guy who knows everything about medicine and mixing them and such. He is starting me on Zyvox super super powerful antibiotic and Prednisone to open up the air ways. If this doesnt do the trick with in 2 weeks off to the HOSPITAL i go. All i could think about was Ari, and how there is no way im about to give up. This lil love bug needs a mommy to be healthy. After figuring out what we were going to do with me. My doc pulled me aside and said your daughter needs a mom who is healthy because if your not you cant take care of her. God it hit me so hard. Duh as a mom i know this, but for my doc to say it it really STUNG. After that appointment i filled out some paper work at my other ones and left. i didnt even care what the other 2 docs had to say about my thyroid or sinuses.
My mind was made up and all i wanted was to see my baby. I sped all the way home making it in an hr and 15 mins. It took me half an hour just to get my thoughts together to tell Eric the news. Then of course he calls me. ha i cried and cried to him. He of all people know the TRUE pain of what my disease really is. How it really affects me. There are few people that really know what my life is all about. I can be happy when i need to be, but he see's behind all that and knows that my body is hurting. He is truly a blessing in my life, he is the half that makes me whole. Sappy but true.
My mind was made up and all i wanted was to see my baby. I sped all the way home making it in an hr and 15 mins. It took me half an hour just to get my thoughts together to tell Eric the news. Then of course he calls me. ha i cried and cried to him. He of all people know the TRUE pain of what my disease really is. How it really affects me. There are few people that really know what my life is all about. I can be happy when i need to be, but he see's behind all that and knows that my body is hurting. He is truly a blessing in my life, he is the half that makes me whole. Sappy but true.
Miss Love bugs BIRTHDAY/MAYO VISIT
Very busy day!! Today is our Ariana Lynn's 1st Birthday. Wish i was home to see her, but soon enough i will be. Currently at the Mayo. Ugh not a fun place to be. The Mayo is a happy but sad and dark place. Its is very beautiful and has amazing architecture The Gonda Building is where most of my time is spent this is the newest part of the Mayo. So there are hug windows over looking the city, they have computers on every floor and tons of seating.
There are never many smiles when you come here. People come here from all around the world to get the best medical help and their lives depend on it. Its hard for me to even smile. Most people are old, falling asleep waiting for their pager to go off. most people come with family. some you can tell are scared and have no idea what to think. Others like myself know the place very well have been coming here at least twice a year since age 15, when first diagnosed with CF. Today is a busy day here i had to wait an hour just to get an ultrasound where my thyroid use to be. Not typical here, they are usually on time. I do have a Dr. that over books himself and there is always a wait for him..................SO ANNOYING!! I pay a lot of money for that spot. So who knows when i will get home tonight.
SAD its my daughters 1st Birthday and i'm not there to be with her. I seriously almost cry over that fact. Luckily she is with my better half, he took the day off. I am with her everyday so on this special day (even though she has no idea) it hurts to be away. But my husband always finds away to make things better. When i talked to him earlier he said he had a surprise waiting for when i got home. I LOVE surprises. He said its for me and Ari!!!!! CANT WAIT!!! Makes me wanna skip the rest of the day filled with doctors and questions and go home and snuggle my 2 loves on this gloomy day.
AHAHA on a funny note, as im typing there is a man who is sleeping with his head all the way back SNORING so loud. haha reminds me of my dad. haha when he snores really loud everyone stops and stares. hahaha.
Today when i got my PFT (Pulmonary Function Test) done it was by a young girl around my age. I always ask them why they chose to work Pulmonary?? It was cool she said her aunt was a nurse and when she was maybe 13 her aunt gave her a book about a girl with CF. She said after reading that book her mind was made up at that point to help in any way she could. SUPER AMAZING how the smallest things touch peoples hearts, and they go for it. She also grew up in Silver Lake which isnt far from Litchfield. SMALL WORLD!
Well Im going to get going and see what the hold up is with my appointments. This afternoon is meeting with all the doctors. Will update and let you know how it turns out.
There are never many smiles when you come here. People come here from all around the world to get the best medical help and their lives depend on it. Its hard for me to even smile. Most people are old, falling asleep waiting for their pager to go off. most people come with family. some you can tell are scared and have no idea what to think. Others like myself know the place very well have been coming here at least twice a year since age 15, when first diagnosed with CF. Today is a busy day here i had to wait an hour just to get an ultrasound where my thyroid use to be. Not typical here, they are usually on time. I do have a Dr. that over books himself and there is always a wait for him..................SO ANNOYING!! I pay a lot of money for that spot. So who knows when i will get home tonight.
SAD its my daughters 1st Birthday and i'm not there to be with her. I seriously almost cry over that fact. Luckily she is with my better half, he took the day off. I am with her everyday so on this special day (even though she has no idea) it hurts to be away. But my husband always finds away to make things better. When i talked to him earlier he said he had a surprise waiting for when i got home. I LOVE surprises. He said its for me and Ari!!!!! CANT WAIT!!! Makes me wanna skip the rest of the day filled with doctors and questions and go home and snuggle my 2 loves on this gloomy day.
AHAHA on a funny note, as im typing there is a man who is sleeping with his head all the way back SNORING so loud. haha reminds me of my dad. haha when he snores really loud everyone stops and stares. hahaha.
Today when i got my PFT (Pulmonary Function Test) done it was by a young girl around my age. I always ask them why they chose to work Pulmonary?? It was cool she said her aunt was a nurse and when she was maybe 13 her aunt gave her a book about a girl with CF. She said after reading that book her mind was made up at that point to help in any way she could. SUPER AMAZING how the smallest things touch peoples hearts, and they go for it. She also grew up in Silver Lake which isnt far from Litchfield. SMALL WORLD!
Well Im going to get going and see what the hold up is with my appointments. This afternoon is meeting with all the doctors. Will update and let you know how it turns out.
Thursday, June 3, 2010
Memorial Weekend
I havent posted in a while, lots to tell. WE had a wonderful weekend Sat we moved my Grandma into assisted living. Best thing we could have done for her. She was ready but not necessarily willing. We got home and went straight to the pool an evening swim was wonderful. The water was so warm Ari loved it.
Sunday we had Family pics taken of us 3 at Como Park by the same lady that did Ari's baby pics. Cant wait to see how they turn out. Debra is amazing and so creative, she had another photographer come with so there should be some good ones captured in time. Hopefully the ones where Ari is smiling we dont look like morons. haha Eric was so concerned with Ari looking at the camera half probably have his hand in front of her face. hahaha.
Debra also asked if i would be interested in doing some modeling for her in my wedding dress. HELL YEAH! So sometime this summer we are going down town and around to get some really cool edgy photos. She wants some of Eric too but not until Oct. She wants to use us for photos on her wall in the studio. SUPER COOL!!!
Sunday night we had a BBQ with Molly and Tom and the boys. It was great hanging out with them. We dont get to see them much with how busy everyone is.
Monday we went to the pool for a while and chilled at home. My mom came down to watch Ari in the evening so we could go to dinner. We went to Santorini's it was amazing food i thought it was Italian but its Greek had some interesting things on the menu, we had lamb it was delicious!
On a blah note my lungs have been feeling like shit once again. I went off this medicine cuz i ran out and need to have my lungs checked before i go back on it. So next Thursday cant come soon enough. I have an appointment at the Mayo. I have been waking up in the middle of the night coughing my head off, my abs have never had such a workout. Its like waking up out of a dead sleep and doing a 100 crunches, throwing up and then trying to fall back asleep, all while trying not to wake up Eric. haha doesnt work poor guy has been sleeping in the other bedroom so he can get some sleep. I hate it!!
Ari is growing like a weed and will be one in 1 week!!! OMG are u serious??? Time seriously fly's. She is getting closer to walking but i dont think she will be walking by her B-day she has a ways to go. she is standing and rocking back and forth not holding on to anything and will take steps from couch to ottoman but nothing else. Thats OK i can wait cuz once she is walking next is running. I need more ENERGY for that! Hope to see everyone at the B-day CELEBRATION!!!
Sunday we had Family pics taken of us 3 at Como Park by the same lady that did Ari's baby pics. Cant wait to see how they turn out. Debra is amazing and so creative, she had another photographer come with so there should be some good ones captured in time. Hopefully the ones where Ari is smiling we dont look like morons. haha Eric was so concerned with Ari looking at the camera half probably have his hand in front of her face. hahaha.
Debra also asked if i would be interested in doing some modeling for her in my wedding dress. HELL YEAH! So sometime this summer we are going down town and around to get some really cool edgy photos. She wants some of Eric too but not until Oct. She wants to use us for photos on her wall in the studio. SUPER COOL!!!
Sunday night we had a BBQ with Molly and Tom and the boys. It was great hanging out with them. We dont get to see them much with how busy everyone is.
Monday we went to the pool for a while and chilled at home. My mom came down to watch Ari in the evening so we could go to dinner. We went to Santorini's it was amazing food i thought it was Italian but its Greek had some interesting things on the menu, we had lamb it was delicious!
On a blah note my lungs have been feeling like shit once again. I went off this medicine cuz i ran out and need to have my lungs checked before i go back on it. So next Thursday cant come soon enough. I have an appointment at the Mayo. I have been waking up in the middle of the night coughing my head off, my abs have never had such a workout. Its like waking up out of a dead sleep and doing a 100 crunches, throwing up and then trying to fall back asleep, all while trying not to wake up Eric. haha doesnt work poor guy has been sleeping in the other bedroom so he can get some sleep. I hate it!!
Ari is growing like a weed and will be one in 1 week!!! OMG are u serious??? Time seriously fly's. She is getting closer to walking but i dont think she will be walking by her B-day she has a ways to go. she is standing and rocking back and forth not holding on to anything and will take steps from couch to ottoman but nothing else. Thats OK i can wait cuz once she is walking next is running. I need more ENERGY for that! Hope to see everyone at the B-day CELEBRATION!!!
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